- Title
- Urban Share of the “Burden”: Impact of a Support Organisation on Caregiver Burden of People Affected by Dementia
- Creator
- Gümüşkaya, Oya; Şen, Sevim; Işık, Isil; Ayaz, Volkan; Arslan Özkan, Hediye; Wilson, Rhonda L.
- Relation
- Perspectives in Psychiatric Care Vol. 2023, Issue 2023, no. 2706698, p. 1-8
- Publisher Link
- http://dx.doi.org/10.1155/2023/2706698
- Publisher
- Wiley-Blackwell
- Resource Type
- journal article
- Date
- 2023
- Description
- Purpose. This study investigated the experiences and expectations of unpaid caregivers who were members of a nonprofit social support organisation. Design and Methods. Colaizzi’s phenomenological exploration was followed. Data were saturated after 15 in-depth individual interviews at a centre for people affected with dementia. Findings. The themes reported with the COREQ checklist were contributory to caregiver burden, the escalation of dementia symptoms, changes in family roles, psychological distress, social challenges, membership in a social network, and developing effective coping skills. Practice Implications. Access, availability, and continuity of psychosocial support programs are vital for the wellbeing of people affected with dementia.
- Subject
- dementia; care givers; support; burden
- Identifier
- http://hdl.handle.net/1959.13/1482580
- Identifier
- uon:50963
- Identifier
- ISSN:0031-5990
- Rights
- Copyright © 2023 Oya Gümüşkaya et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. (http://creativecommons.org/licenses/by/4.0/).
- Language
- eng
- Full Text
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